RESEARCH
Multi-Center Prospective Studies
Pediatric PseudoTumor cerebri syndrome Study (PPTS)
Study chairs: Grant Liu, Shana McCormack, Rob Avery
Status: Anticipated start date TBD
NF1 OPG Natural History Study
Study chairs: Robert Avery, Michael Fisher
Sponsors: Children’s Tumor Foundation, The Gilbert Family Neurofibromatosis Institute
Status: Recruitment ongoing
Pediatric Optic Neuritis Prospective Outcomes Study
PI: Stacy Pineles
Sponsors: Pediatric Eye Disease Investigator Group (PEDIG), Neuro-Ophthalmology Research Disease Investigator Consortium (NORDIC)
Status: Study completed (Link to study publications)
Recent publications by CPNO members
Schein Y, Miller KD, Han Y, Yu Y, de Alba Campomanes AG, Binenbaum G, Oatts JT. Ocular examinations, findings, and toxicity in children taking vigabatrin. J AAPOS. 2022 Aug;26(4):187.e1-187.e6.
Gise R, Heidary G. The visual morbidity of optic nerve head drusen: a longitudinal review. J AAPOS. 2023 Feb;27(1):30.e1-30.e5.
Arruti N, Rodríguez-Solana P, Nieves-Moreno M, Guerrero-Carretero M, Del Pozo Á, Montaño VEF, Santos-Simarro F, Rikeros-Orozco E, Delgado-Mora L, Vallespín E, Noval S. OPA1 Dominant Optic Atrophy: Diagnostic Approach in the Pediatric Population. Curr Issues Mol Biol. 2023 Jan 5;45(1):465-478.
Elhusseiny AM, Fong JW, Hsu C, Grigorian F, Grigorian AP, Soliman MK, Sallam AB, Uwaydat SH, Phillips PH. Oral Fluorescein Angiography for the Diagnosis of Papilledema Versus Pseudopapilledema in Children. Am J Ophthalmol. 2022 Sep 6;245:8-13.
Brodsky MC, Aul BJ, Daniels DJ, El-Dairi M. Escape from prism. Surv Ophthalmol. 2022 Feb 15:S0039-6257(22)00032-7.
Chang MY, Grosrenaud P, Borchert MS. Characteristics and Outcomes of Idiopathic and Non-idiopathic Ocular Motor Apraxia in Children. J Pediatr Ophthalmol Strabismus. 2022 Feb 23:1-6.
Raja S, Emadi BS, Gaier ED, Gise RA, Fulton AB, Heidary G. Evaluation of the Relationship Between Preferential Looking Testing and Visual Evoked Potentials as a Biomarker of Cerebral Visual Impairment. Front Hum Neurosci. 2021 Oct 27;15:769259.
Peragallo JH, Bruce BB, Vasseneix C, Jariyakosol S, Janss AJ, Newman NJ, Biousse V. Vision-related quality-of-life in pediatric primary brain tumor patients. J Neurooncol. 2021 Sep;154(3):365-373.
Avery RA, Go C, Fisher MJ, Liu GT, Garcia A, Richter M, McGeehan B, Quinn GE, Ying GS. Comparison of Visual Acuity Results Between ATS-HOTV and E-ETDRS Testing Methods in Children With Optic Pathway Gliomas. Transl Vis Sci Technol. 2022 Mar 2;11(3):10.
Heidary G, Fisher MJ, Liu GT, Ferner RE, Gutmann DH, Listernick RH, Kapur K, Loguidice M, Ardern-Holmes SL, Avery RA, Hammond C, Hoffman RO, Hummel TR, Kuo A, Reginald A, Ullrich NJ. Visual field outcomes in children treated for neurofibromatosis type 1-associated optic pathway gliomas: a multicenter retrospective study. J AAPOS. 2020 Dec;24(6):349.e1-349.e5.
CPNO Textbook: Fundamentals of Pediatric Neuro-Ophthalmology. Heidary G, Phillips P (eds). 2023, Springer. Available at Amazon.
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